Pediatric Oncology Palliative Care: Experiences of General Practitioners and Bereaved Parents

Neilson, Susan, Gibson, F. and Greenfield, S. (2015) Pediatric Oncology Palliative Care: Experiences of General Practitioners and Bereaved Parents. Journal of Palliative Care and Medicine, 5 (2). pp. 1-8. ISSN 2165-7386

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Abstract

Objective: This qualitative study set in the West Midlands region of the United Kingdom, aimed to examine the
role of the general practitioner (GP) in children's oncology palliative care from the perspective of GPs who had cared for a child with cancer receiving palliative care at home and bereaved parents.
Methods: One-to-one semi-structured interviews were undertaken with 18 GPs and 11 bereaved parents
following the death. A grounded theory data analysis was undertaken; identifying generated themes through
chronological comparative data analysis.
Results: Similarity in GP and parent viewpoints was found, the GPs role seen as one of providing medication and
support. Time pressures GPs faced influenced their level of engagement with the family during palliative and
bereavement care and their ability to address their identified learning deficits. Lack of familiarity with the family, coupled with an acknowledgment that it was a rare and could be a frightening experience, also influenced their level of interaction. There was no consistency in GP practice nor evidence of practice being guided by local or national policies. Parents lack of clarity of their GPs role resulted in missed opportunities for support.
Conclusions: Time pressures influence GP working practices. Enhanced communication and collaboration
between the GP and regional childhood cancer centre may help address identified GP challenges, such as learning
deficits, and promote more time-efficient working practices through role clarity. Parents need greater awareness of
their GP's wide-ranging role; one that transcends palliative care incorporating bereavement support and on-going medical care for family members

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